ResourceContact InformationAsk About
American Association of Kidney Patients
2701 North Rocky Point Drive, Suite 150
Tampa, FL 33607
Phone: (813) 636-8100
Toll Free: (800) 749-2257
Fax: (813) 636-8122
Email: info@aakp.org
Web Site: www.aakp.org
  • Patient education programs.

  • Magazines & pamphlets about
    living with kidney disease,
    dialysis & transplant.

  • Health-tracking tools.

  • Local patient groups.
  • American Kidney Fund
    11921 Rockville Pike, Suite 300
    Rockville, MD 20852
    Toll Free: (800) 638-8299
    Fax: (301) 881-0898
    Email: helpline@kidneyfund.org
    Web Site: www.kidneyfund.org
  • Financial grants for persons
    with kidney failure.

  • Discount pharmacy cards.

  • Education programs
    & pamphlets about
    kidney disease, dialysis, &
    transplant.
  • Life Options Rehabilitation Program
    414 D’Onofrio Drive, Suite 200
    Madison, WI 53719
    Toll Free: (800) 468-7777
    Fax: (608) 833-8366
    Email: lifeoptions@meiresearch.org
    Web Site: www.lifeoptions.org
  • Free booklets on exercise,
    family support, employment &
    insurance with kidney failure.

  • Resources to help people
    with kidney disease
    live long and well.
  • National Kidney Foundation
    30 East 33rd Street, Suite 1100
    New York, NY 10016
    Phone: (212) 889-2210
    Toll Free: (800) 622-9010
    Fax: (212) 689-9261
    Email: info@kidney.org
    Web Site: www.kidney.org
  • Patient Advocacy.

  • Support Groups.

  • Education programs and
    pamphlets about kidney disease,
    kidney failure, dialysis
    and transplant.
  • National Kidney & Urologic Diseases Info Clearinghouse
    3 Information Way
    Bethesda, MD 20892
    Toll Free: (800) 891-5390
    Fax: (703) 738-4929
    Email: nkudic@info.niddk.nih.gov
    Web Site: www.kidney.niddk.nih.gov
  • Information and pamphlets
    about disease, dialysis and
    transplant.
  • Renal Support Network
    1146 N. Central Ave. #121
    Glendale, CA 91202
    Phone: (818) 543-0896
    Toll Free: (866) 903-1728
    Web Site: www.rsnhope.org
  • Provides non-medical services
    to those affected by chronic
    kidney disease (CKD).
  • Polycystic Kidney Research Foundation
    8330 Ward Parkway, Suite 510
    Kansas City, MO 64114
    Phone: (816) 931-2600
    Toll Free: (800) 753-2873
    Email: pkdcure@pkdcure.org
    Web Site: www.pkdcure.org
  • Information on polycystic
    kidney disease, research,
    support groups and advocacy.
  • Healthfinder.gov
    P.O. Box 1133
    Washington, DC 20013-1133
    Email: healthfinder@nhic.org
    Web Site: www.healthfinder.gov
  • Information on kidney disease,
    as well as other conditions that
    patients with kidney disease might have.
  • Home Dialysis Central
    c/o Medical Education Institute, Inc.
    414 D’Onofrio Drive, Suite 200
    Madison, WI 53719
    Phone: (608) 833-8033
    Fax: (608) 833-8366
    Web Site: www.homedialysis.org
  • Information on home dialysis.

  • Online support groups for
    patients and caregivers.
  • Kidney SchoolWeb Site: kidneyschool.org
  • Sixteen 30-minute online
    modules regarding kidney
    care, treatments, coping,
    staying active, vascular access
    and quality of life. Also
    available in Spanish.
  • Dialysis Patients Citizens
    122 C Street NW, Suite 510
    Washington, DC 20001
    Toll Free: (866) 877-4242
    Fax: (202) 789-6935
    Email: dpc@dialysispatients.org
    Web Site: www.dialysispatients.org
  • Non-profit, patient-led dialysis
    organization open only to
    dialysis and pre-dialysis
    patients and their families.
    DPC is working to improve the
    quality of life for all dialysis
    patients through education
    and advocacy.
  • Forum of ESRD Networks
    P.O. Box 203
    Birchwood, WI 54817
    Phone: (715) 354-3735
    Fax: (888) 571-2065
    Web Site: www.esrdnetworks.org
  • The Forum website helps find
    your Network or dialysis
    center, locate other kidney
    resources, read articles about
    kidney health, and learn
    about kidney-related meetings.
  • NephKidsWeb Site: cybernephrology.ualberta.ca/nephkids
  • Visit the site to subscribe to a
    doctor-moderated email
    support group for children or
    teens with chronic kidney
    disease. The site also contains
    information on kidney disease
    in children and links to kidney
    disease resources.
  • The Nephron Information CenterWeb Site: www.nephron.com
  • Go to this site for information
    about kidney disease, dialysis
    and transplant.
  • Children’s Organ Transplant Association, Inc.
    2501 West COTA Drive
    Bloomington, IN 47403
    Toll Free: (800) 366-2682
    Fax: (812) 336-8885
    Email: cota@cota.org
    Web Site: www.cota.org
  • Learn about fundraising
    options and financial help for
    children’s transplants. Organ
    Donation website: www.organdonor.gov

  • Read transplant and donor
    stories, and get answers to
    questions about transplants.
  • Donate Life America
    701 Byrd Street, 16th Floor
    Richmond, VA 23219
    Phone: (804) 377-3580
    Fax: (804) 377-3590
    Email: donatelifeamerica@donatelife.net
    Web Site: www.shareyourlife.org
  • Organ and tissue donation
    information.
  • Transplant Recipients International Organization (TRIO)
    2100 M Street NW #170-353
    Washington, DC 20037-1233
    Phone: (202) 293-0980
    Toll Free: (800) 874-6386
    Email: info@trioweb.org
    Web Site: www.trioweb.org
  • Information on donor
    awareness.

  • Advocacy for transplantation.
  • United Network for Organ Sharing (UNOS)
    700 North 4th Street
    P.O. Box 2484
    Richmond, VA 23219
    Phone: (804) 782-4800
    Toll Free: (888) 894-6361
    Fax: (804) 782-4817
    Web Site: www.unos.org
  • Information and pamphlets
    on organ donation and
    transplants.

  • Transplant waiting lists.

  • Statistical information.
  • Other Medicare End-Stage Renal
    Disease (ESRD) Program Projects
    Web Site:
    www.cms.hhs.gov/ESRDQualityImprovement
  • To access additional
    information on the End Stage
    Renal Disease Program and
    quality activities, visit this site.
  • Medical Education Institute, Inc.
    414 D'Onofrio Drive, Suite 200
    Madison, WI 53719
    Phone: (608) 833-8033
    Fax: (608) 833-8366
    Web Site: www.meiresearch.org
  • Life Options

  • Home Dialysis Central

  • Kidney School

  • KDOOL Complete

  • My Dialysis Choice
  • Kidney Community Emergency Response (KCER)
    3000 Bayport Dr., Suite 300
    Tamps, FL 33607
    KCER Hotline: (866) 901-3773
    Fax: (855) 232-5237
    Email: KCERinfo@hsag.com
    Website: www.kcercoalition.com/en/
  • KCER patient Committees

  • Emergency Management
    Preparedness
  • ESRD National Coordinating Center (NCC)
    3000 Bayport Dr., Suite 300
    Tamps, FL 33607
    Phone: (844) 472-4250
    Email: nccinfo@hsag.com
    Website: www.esrdncc.org
  • National ESRD Activities

  • ESRD Educational Material
  • Dialysis Patient Citizens (DPC)
    1012 14th Street NW, Suite 1475
    Washington, DC 20005
    Phone: (866) 877-4242
    Fax: (866) 423-5002
    Email: dcp@dialysispatients.org
    WEbsite: www.dialysispatients.org/
  • DPC Education Center
  • National Form of ESRD Networks
    Post Office Box 203
    Birchwood, WI 54817
    Phone: (715) 354-3735
    Fax: 1-888-571-2065
    Website: www.esrdnetworks.org/
  • Kidney Patient Advisory
    Council (KPAC)