Kidney Resources – Network 9

Resource	Contact Information	Ask About
American Association of Kidney Patients 2701 North Rocky Point Drive, Suite 150 Tampa, FL 33607	Phone: (813) 636-8100 Toll Free: (800) 749-2257 Fax: (813) 636-8122 Email: info@aakp.org Web Site: www.aakp.org	Patient education programs. Magazines & pamphlets about living with kidney disease, dialysis & transplant. Health-tracking tools. Local patient groups.
American Kidney Fund 11921 Rockville Pike, Suite 300 Rockville, MD 20852	Toll Free: (800) 638-8299 Fax: (301) 881-0898 Email: helpline@kidneyfund.org Web Site: www.kidneyfund.org	Financial grants for persons with kidney failure. Discount pharmacy cards. Education programs & pamphlets about kidney disease, dialysis, & transplant.
Life Options Rehabilitation Program 414 D’Onofrio Drive, Suite 200 Madison, WI 53719	Toll Free: (800) 468-7777 Fax: (608) 833-8366 Email: lifeoptions@meiresearch.org Web Site: www.lifeoptions.org	Free booklets on exercise, family support, employment & insurance with kidney failure. Resources to help people with kidney disease live long and well.
National Kidney Foundation 30 East 33rd Street, Suite 1100 New York, NY 10016	Phone: (212) 889-2210 Toll Free: (800) 622-9010 Fax: (212) 689-9261 Email: info@kidney.org Web Site: www.kidney.org	Patient Advocacy. Support Groups. Education programs and pamphlets about kidney disease, kidney failure, dialysis and transplant.
National Kidney & Urologic Diseases Info Clearinghouse 3 Information Way Bethesda, MD 20892	Toll Free: (800) 891-5390 Fax: (703) 738-4929 Email: nkudic@info.niddk.nih.gov Web Site: www.kidney.niddk.nih.gov	Information and pamphlets about disease, dialysis and transplant.
Renal Support Network 1146 N. Central Ave. #121 Glendale, CA 91202	Phone: (818) 543-0896 Toll Free: (866) 903-1728 Web Site: www.rsnhope.org	Provides non-medical services to those affected by chronic kidney disease (CKD).
Polycystic Kidney Research Foundation 8330 Ward Parkway, Suite 510 Kansas City, MO 64114	Phone: (816) 931-2600 Toll Free: (800) 753-2873 Email: pkdcure@pkdcure.org Web Site: www.pkdcure.org	Information on polycystic kidney disease, research, support groups and advocacy.
Healthfinder.gov P.O. Box 1133 Washington, DC 20013-1133	Email: healthfinder@nhic.org Web Site: www.healthfinder.gov	Information on kidney disease, as well as other conditions that patients with kidney disease might have.
Home Dialysis Central c/o Medical Education Institute, Inc. 414 D’Onofrio Drive, Suite 200 Madison, WI 53719	Phone: (608) 833-8033 Fax: (608) 833-8366 Web Site: www.homedialysis.org	Information on home dialysis. Online support groups for patients and caregivers.
Kidney School	Web Site: kidneyschool.org	Sixteen 30-minute online modules regarding kidney care, treatments, coping, staying active, vascular access and quality of life. Also available in Spanish.
Dialysis Patients Citizens 122 C Street NW, Suite 510 Washington, DC 20001	Toll Free: (866) 877-4242 Fax: (202) 789-6935 Email: dpc@dialysispatients.org Web Site: www.dialysispatients.org	Non-profit, patient-led dialysis organization open only to dialysis and pre-dialysis patients and their families. DPC is working to improve the quality of life for all dialysis patients through education and advocacy.
Forum of ESRD Networks P.O. Box 203 Birchwood, WI 54817	Phone: (715) 354-3735 Fax: (888) 571-2065 Web Site: www.esrdnetworks.org	The Forum website helps find your Network or dialysis center, locate other kidney resources, read articles about kidney health, and learn about kidney-related meetings.
NephKids	Web Site: cybernephrology.ualberta.ca/nephkids	Visit the site to subscribe to a doctor-moderated email support group for children or teens with chronic kidney disease. The site also contains information on kidney disease in children and links to kidney disease resources.
The Nephron Information Center	Web Site: www.nephron.com	Go to this site for information about kidney disease, dialysis and transplant.
Children’s Organ Transplant Association, Inc. 2501 West COTA Drive Bloomington, IN 47403	Toll Free: (800) 366-2682 Fax: (812) 336-8885 Email: cota@cota.org Web Site: www.cota.org	Learn about fundraising options and financial help for children’s transplants. Organ Donation website: www.organdonor.gov Read transplant and donor stories, and get answers to questions about transplants.
Donate Life America 701 Byrd Street, 16th Floor Richmond, VA 23219	Phone: (804) 377-3580 Fax: (804) 377-3590 Email: donatelifeamerica@donatelife.net Web Site: www.shareyourlife.org	Organ and tissue donation information.
Transplant Recipients International Organization (TRIO) 2100 M Street NW #170-353 Washington, DC 20037-1233	Phone: (202) 293-0980 Toll Free: (800) 874-6386 Email: info@trioweb.org Web Site: www.trioweb.org	Information on donor awareness. Advocacy for transplantation.
United Network for Organ Sharing (UNOS) 700 North 4th Street P.O. Box 2484 Richmond, VA 23219	Phone: (804) 782-4800 Toll Free: (888) 894-6361 Fax: (804) 782-4817 Web Site: www.unos.org	Information and pamphlets on organ donation and transplants. Transplant waiting lists. Statistical information.
Other Medicare End-Stage Renal Disease (ESRD) Program Projects	Web Site: www.cms.hhs.gov/ESRDQualityImprovement	To access additional information on the End Stage Renal Disease Program and quality activities, visit this site.
Medical Education Institute, Inc. 414 D'Onofrio Drive, Suite 200 Madison, WI 53719	Phone: (608) 833-8033 Fax: (608) 833-8366 Web Site: www.meiresearch.org	Life Options Home Dialysis Central Kidney School KDOOL Complete My Dialysis Choice
Kidney Community Emergency Response (KCER) 3000 Bayport Dr., Suite 300 Tamps, FL 33607	KCER Hotline: (866) 901-3773 Fax: (855) 232-5237 Email: KCERinfo@hsag.com Website: www.kcercoalition.com/en/	KCER patient Committees Emergency Management Preparedness
ESRD National Coordinating Center (NCC) 3000 Bayport Dr., Suite 300 Tamps, FL 33607	Phone: (844) 472-4250 Email: nccinfo@hsag.com Website: www.esrdncc.org	National ESRD Activities ESRD Educational Material
Dialysis Patient Citizens (DPC) 1012 14th Street NW, Suite 1475 Washington, DC 20005	Phone: (866) 877-4242 Fax: (866) 423-5002 Email: dcp@dialysispatients.org WEbsite: www.dialysispatients.org/	DPC Education Center
National Form of ESRD Networks Post Office Box 203 Birchwood, WI 54817	Phone: (715) 354-3735 Fax: 1-888-571-2065 Website: www.esrdnetworks.org/	Kidney Patient Advisory Council (KPAC)