Resource | Contact Information | Ask About |
---|---|---|
American Association of Kidney Patients 2701 North Rocky Point Drive, Suite 150 Tampa, FL 33607 | Phone: (813) 636-8100 Toll Free: (800) 749-2257 Fax: (813) 636-8122 Email: info@aakp.org Web Site: www.aakp.org | living with kidney disease, dialysis & transplant. |
American Kidney Fund 11921 Rockville Pike, Suite 300 Rockville, MD 20852 | Toll Free: (800) 638-8299 Fax: (301) 881-0898 Email: helpline@kidneyfund.org Web Site: www.kidneyfund.org | with kidney failure. & pamphlets about kidney disease, dialysis, & transplant. |
Life Options Rehabilitation Program 414 D’Onofrio Drive, Suite 200 Madison, WI 53719 | Toll Free: (800) 468-7777 Fax: (608) 833-8366 Email: lifeoptions@meiresearch.org Web Site: www.lifeoptions.org | family support, employment & insurance with kidney failure. with kidney disease live long and well. |
National Kidney Foundation 30 East 33rd Street, Suite 1100 New York, NY 10016 | Phone: (212) 889-2210 Toll Free: (800) 622-9010 Fax: (212) 689-9261 Email: info@kidney.org Web Site: www.kidney.org | pamphlets about kidney disease, kidney failure, dialysis and transplant. |
National Kidney & Urologic Diseases Info Clearinghouse 3 Information Way Bethesda, MD 20892 | Toll Free: (800) 891-5390 Fax: (703) 738-4929 Email: nkudic@info.niddk.nih.gov Web Site: www.kidney.niddk.nih.gov | about disease, dialysis and transplant. |
Renal Support Network 1146 N. Central Ave. #121 Glendale, CA 91202 | Phone: (818) 543-0896 Toll Free: (866) 903-1728 Web Site: www.rsnhope.org | to those affected by chronic kidney disease (CKD). |
Polycystic Kidney Research Foundation 8330 Ward Parkway, Suite 510 Kansas City, MO 64114 | Phone: (816) 931-2600 Toll Free: (800) 753-2873 Email: pkdcure@pkdcure.org Web Site: www.pkdcure.org | kidney disease, research, support groups and advocacy. |
Healthfinder.gov P.O. Box 1133 Washington, DC 20013-1133 | Email: healthfinder@nhic.org Web Site: www.healthfinder.gov | as well as other conditions that patients with kidney disease might have. |
Home Dialysis Central c/o Medical Education Institute, Inc. 414 D’Onofrio Drive, Suite 200 Madison, WI 53719 | Phone: (608) 833-8033 Fax: (608) 833-8366 Web Site: www.homedialysis.org | patients and caregivers. |
Kidney School | Web Site: kidneyschool.org | modules regarding kidney care, treatments, coping, staying active, vascular access and quality of life. Also available in Spanish. |
Dialysis Patients Citizens 122 C Street NW, Suite 510 Washington, DC 20001 | Toll Free: (866) 877-4242 Fax: (202) 789-6935 Email: dpc@dialysispatients.org Web Site: www.dialysispatients.org | organization open only to dialysis and pre-dialysis patients and their families. DPC is working to improve the quality of life for all dialysis patients through education and advocacy. |
Forum of ESRD Networks P.O. Box 203 Birchwood, WI 54817 | Phone: (715) 354-3735 Fax: (888) 571-2065 Web Site: www.esrdnetworks.org | your Network or dialysis center, locate other kidney resources, read articles about kidney health, and learn about kidney-related meetings. |
NephKids | Web Site: cybernephrology.ualberta.ca/nephkids | doctor-moderated email support group for children or teens with chronic kidney disease. The site also contains information on kidney disease in children and links to kidney disease resources. |
The Nephron Information Center | Web Site: www.nephron.com | about kidney disease, dialysis and transplant. |
Children’s Organ Transplant Association, Inc. 2501 West COTA Drive Bloomington, IN 47403 | Toll Free: (800) 366-2682 Fax: (812) 336-8885 Email: cota@cota.org Web Site: www.cota.org | options and financial help for children’s transplants. Organ Donation website: www.organdonor.gov stories, and get answers to questions about transplants. |
Donate Life America 701 Byrd Street, 16th Floor Richmond, VA 23219 | Phone: (804) 377-3580 Fax: (804) 377-3590 Email: donatelifeamerica@donatelife.net Web Site: www.shareyourlife.org | information. |
Transplant Recipients International Organization (TRIO) 2100 M Street NW #170-353 Washington, DC 20037-1233 | Phone: (202) 293-0980 Toll Free: (800) 874-6386 Email: info@trioweb.org Web Site: www.trioweb.org | awareness. |
United Network for Organ Sharing (UNOS) 700 North 4th Street P.O. Box 2484 Richmond, VA 23219 | Phone: (804) 782-4800 Toll Free: (888) 894-6361 Fax: (804) 782-4817 Web Site: www.unos.org | on organ donation and transplants. |
Other Medicare End-Stage Renal Disease (ESRD) Program Projects | Web Site: www.cms.hhs.gov/ESRDQualityImprovement | information on the End Stage Renal Disease Program and quality activities, visit this site. |
Medical Education Institute, Inc. 414 D'Onofrio Drive, Suite 200 Madison, WI 53719 | Phone: (608) 833-8033 Fax: (608) 833-8366 Web Site: www.meiresearch.org | |
Kidney Community Emergency Response (KCER) 3000 Bayport Dr., Suite 300 Tamps, FL 33607 | KCER Hotline: (866) 901-3773 Fax: (855) 232-5237 Email: KCERinfo@hsag.com Website: www.kcercoalition.com/en/ | Preparedness |
ESRD National Coordinating Center (NCC) 3000 Bayport Dr., Suite 300 Tamps, FL 33607 | Phone: (844) 472-4250 Email: nccinfo@hsag.com Website: www.esrdncc.org | |
Dialysis Patient Citizens (DPC) 1012 14th Street NW, Suite 1475 Washington, DC 20005 | Phone: (866) 877-4242 Fax: (866) 423-5002 Email: dcp@dialysispatients.org WEbsite: www.dialysispatients.org/ | |
National Form of ESRD Networks Post Office Box 203 Birchwood, WI 54817 | Phone: (715) 354-3735 Fax: 1-888-571-2065 Website: www.esrdnetworks.org/ | Council (KPAC) |